Monday, September 5, 2011

To Boston, to Boston to try a new doctor

Our trip to Boston was everything we hoped it would be.  The specialists at Children's Hospital knew all the right questions and had all the right answers, granted some of those answers were not easy to swallow, but we feel confident moving forward with their recommendations, after all, they have actually seen cystic hygroma before.  Amazing.  The next step will be 3 to 4 rounds of sclerotherapy and then a tongue reduction in the spring.  Thankfully one of the colleagues from the Boston Children's office just relocated in July to our hospital, Primary Children's hospital in July, so Maaike will receive her treatments here.  We will most likely fly back to Boston for the tongue reduction, but one step at a time.

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