Sunday, December 23, 2012

Who are you? I think we should meet.

Pageviews by Countries

Graph of most popular countries among blog viewers
EntryPageviews
United States
187
Russia
27
United Kingdom
12
Canada
6
Australia
5
Poland
3
United Arab Emirates
2
Brazil
2
Ukraine
2
Belgium
1

Are there a lot of traches in Russia?  How did you find your way here? What were you searching for? Did you find it?  Do you have a trach?  Does your child?  With this blog being such a niche blog I am curious about who you are. I have been amazed at how many hits a day I have been averaging. Blow away at my total page views.  I would have guessed a hundred a year, not 15,000. I would love to know who you are and just how or why you ended up here, even if it was by mistake.  So please take just a moment and leave a comment.  I'd love you meet you. I'll start:

 Hi, my name is Rian.  I have a daughter with a trach, she has lymphatic and vascular malformations.  I started this blog so I wouldn't feel so alone in our journey.  I'm thrilled to meet you.

18 comments:

  1. Hi, my name is Daniela. I am from Bavaria, Germany. I found your other blog presserfoot on the internet because I love DIY-blogs. I saw what you made for Maaike and got interested in her story... and now I come to trach ties every now and then. I don't know anyone with a trach but I am visiting your blog regularly to see how you do and to be amazed how you cope with all those difficult situations.

    You are such a wonderful Family. I wish you all the best.

    Merry Christmas - Fröhliche Weihnachten!
    Daniela

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    1. Daniela,

      I guess you know that I also love to DIY. Doing presserfoot was so much fun and sometimes I wish it were still going. I'm glad you enjoyed it and then found your way here. Happy New Year!

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  2. My name is Meggan. I am from Alaska. I do not have a child with a trach and think I found your blog through the Special Needs Spotlight (if I'm remembering correctly you'll know what that is). I do have 5 (about to be 6) children of my own and just love to hear other people's stories and about other's lives as a reminder that there are so many different people and situations out there. You have a beautiful family. If you want to see my family you can peek at my blog: daysatthehayes(dot)blogspot(dot)com. I have your blog in my google reader, so when you post, I see it. Merry Christmas!

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    1. Meggan,

      Your family is so cute. I can't believe you are about to have your sixth! That is amazing! You are amazing! Maaike just had her tonsils and adenoids out as well. It seemed so routine, I wasn't prepared for the recovery. :( I hope it went well for you guys. You are a serious warrior mom! Congrats on the new little one!

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  3. Hi, my name is Jana. I am from the Czech Republic. I guess I found your blog through the sites of Liamsland. I was trying to find some details about lymphatic malformations. My 2-years old daughter has the same handicap as your little daughter. She does not have the trach, fortunatelly, not anymore - we spent 6 month of the last year having the trach and I can tell you I have admiration for you and youre family. It is so exhausting for such a long time... Maybe you will find an email from me from this January where I described our situation.
    I wish you a better year of 2013!

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    1. Wow! The Czech Republic! That is amazing. How is your little one doing? What treatments do they us there on LM? I would love to hear more of your story. You can email me at riankro(at) gmail (dot) com.

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  4. Hi I'm Amanda. I found your blog through Miggy's spotlight. My son was also spotlighted there and I am drawn to others who care for for these special children!

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    1. I love Miggy's blog. It's one of the few I read these days, so little time, so I am sure I read your spotlight, though I can't remember the specifics. I'll have to go back and find it. I see that we go to the same hospital. I wonder if we have ever passed in the hall. :) Maybe, someday, we could meet?

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  5. Used to follow Presserfoot :) I check back in every once and a while to see how Maaike is doing...I am a pediatric occupational therapist and love special needs kiddos :)

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    1. I get teary thinking about the therapist who have helped us along our way. I really don't know what we would have done without them. Really. Bless you. I loved reading about the Happiness Project on your blog. Looks really inspirational. I may have to give it a try.

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  6. I'm in the uk and have a 1yr old daughter with a trachy, in fact this page was posted on her first birthday!!
    We discovered you in those first scary days in picu and it was so wonderful reading about someone who had been on a similar journey. Many a tear has been shed reading these pages, not tears of sadness as such but tears of relief I guess that we are not alone. The blog post that made the biggest impression was "the woman in 8c" as we have another daughter who was shipped off to grandma far too much in those early hospital days. It's wonderful seeing how far little Maaike has come. Keep writing, I get excited when I see a new post

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  7. Gemma,
    First, I love your name. We have a young friend with the same name and she is fully of spunk and the passion to change the world, so right off the bat I like you too. I'm so glad you have found comfort here and know you are not alone. I wish I was able to write more. I'm going to try to really push myself this year. There are so many, many more things I want to share in this blog. I hope your daughter is doing well and Happy Birthday! to her as well. Keep checking back. Let me know if there is anything in particular you would like to see on this blog. :)

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  8. Hi Rian,
    I sew, and was an avid follower of presserfoot. I now stop by here and now (from North Carolina) to see how Maaike is doing. She seems like a joy, and I admire you and your family.
    I hope you still find time to sew, whether you post about it or not. It's important not to lose yourself with everything else that is going on.
    Carolyn

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    1. Carolyn,

      You give sage advice. I haven't been sewing much lately, but just scheduled to sew with a friend next Monday. You are so right. It is so easy to get totally wrapped up in our children, special needs or not, and forget who we are and what makes us a great and unique mother/person in the first place. I love North Carolina by the way.

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  9. I found your blog by accident, and I started reading and couldn't stop. You are such a strong family, and it's a breath of fresh air to see some one so unafraid to share their story. People should not have to suffer alone. They should be able to reach out and find some one else in similar situations, compare notes and move forward. A woman I know from when I was younger has a step-son with a trach, but I wasn't sure why. We don't talk much so I was never comfortable asking. But this gives me some sort of insight as to what she's going through. I'm glad I found you blog.

    I wish nothing but the best for you and your family.

    Stephanie

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    1. Stephanie,

      Thank you so much for your kind words. One of the biggest things I've learned through our experiences with Maaike is how little I understand with what is going on in others' lives. I am surprised over and over by people's stories. I'm glad we could give you a little window into your friend's life. Thanks for stopping by and commenting!

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  10. I found you from the http://presserfoot.blogspot.com/search/label/alterations link on Pinterest and wondered what you had gone onto blogging about. Hope your daughter is doing well and I wish you luck with your blog.

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    1. Heather,

      Thanks for checking in. I love interest too. I had no idea I was linked. Very cool.

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