Saturday, June 26, 2010
The next step and new accessories
Baby Maaike and I are doing well. Being back in Utah has given Maaike the chance to meet some of her relatives and has given me ample time to catch up on all the TV I had been missing (unfortunately I hadn't missed much). Maaike has been tested, observed, and discussed. So young and already so popular. Fortunately we have come to a resolved coarse of action. On July 2nd Maaike will undergo a one hour surgery to place a tracheostomy in her tiny neck. A great website with photos of other kiddos in Maaike's club is tracheostomy.com. We estimate she will have her trach for 2 to 4 years, buying us time for Maaike to grow and to observe the growth of her cysts. To ensure Maaike makes it safely to her surgery she has picked up a few new accessories including an oxygen tank and oxycemeter for her sleeping hours. Next stop... a 1980's choker.